DAVID'S FIGHT (w/Trisomy 18): See You Soon

Tuesday, March 29, 2011

See You Soon

March 30th - 2:26am
3D COMING SOON!
I can't sleep. I get to see him this morning.
15 minutes with Mom and Dad.
We are doing a 3D ultrasound at 10am today, donated by people who love our family.
What a gift. The gift of seeing his face, and his strong body.

I am indebted to the people who are donating their resources to making this preview happen.

Dear David,

A song just played that makes me think of you.

It's my anthem to you son.

What will you look like? Will you have my eye's, your mother's chin? Will you look at us in the camera? Will I see your fingers and hands opened up or will you have on your boxing gloves? Will your arm be extended like Mel Gibson in Braveheart or will you be flexing like Arnold?
Will you be preparing for battle like your first name or playing the air guitar like the one who shares your middle name?

Only two things I know for a fact: You are my son and you are beautiful.

Looking forward to seeing you soon.

Love,

Dad

1 comment:

mama to manyMarch 31, 2011 at 12:00 PM
love this.
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DEFINITION OF TRISOMY 18 (EDWARD'S SYNDROME)

Edwards Syndrome : Edwards Syndrome (Trisomy 18) is a chromosomal abnormality where there is an extra chromosome present in every cell of the body. This is an example of where “the more the merrier” is not true. This extra chromosome means that every cell has extra information encoded into it. The extra information causes confusion in the way that the cells are formed and results in the potential malformation of all of the body systems. Sadly, this condition is considered "not compatible with life". Just like with Down's Syndrome (Trisomy 21), there is a wide range of how this condition will play out (what the doctor's will refer to as your child's phenotype). Unfortunately because there is more information encoded on the 18th chromosome, the severity of this condition is greater than that of Down's Syndrome. Current studies show that while 1:1500 children will be diagnosed prenatally with trisomy 18, only half that number (or 1:3000) will be born alive at full term. Of those who survive to birth, only half will make it to two months of age, and only 10% will survive to their first birthday. Children who live can be an important part of their family and community, but are profoundly developmentally delayed.